Episode 3: Some Days you gotta get out and walk


Walking is good for me. Physical movement and excerise are good for me. I know this, it comes up at every appointment with the Rhuematologist. But sometimes, it’s easier than others. Virtual Races make it more fun, online running clubs like the Hogwarts Running Club make more fun. And using apps like Charity Miles, help to make it more meaningful when I can do it. I’m not just getting out and doing something for me, I’m helping doing something more, this month my charity of choice is Girl Up, which works to empower girls worldwide, and my virtual race I’m doing through Yes.Fit is the Adventures of Sherlock race. 

Doing something for me is huge and big and important, and good for my physical and mental health. But getting to connect to the wider world around me? What else is technology for?Hogwarts Running Club


Girl Up
Charity Miles


Episode 2: The Truth of the Smile


Even when I’m having fun and doing something I love I hurt. Even when I’m off someplace at an event for something I adore I hurt. I may be ignoring a low pain day, I may be pushing away a flare, or I may be pulling out meds and saying “I’ve got this and no matter what I’m damn well going to enjoy this,” but the pain is there always. My limited movement makes it more awkward because I haven’t yet found a way to not feel super awkward with my body and the way it moves and doesn’t move now. I’ve never liked smiling. But now, these days I feel like smiling is a mask. Something I put on for the world to tell them “oh I’m ok, I’m fine, I’m even pain free and normal” when none of those are true. Not one. Not smiling is normal. And I’m learning that I don’t need to smile and fake
it all the time. So even if I’m not smiling I’m still likely having a blast. And I’m likely internally screaming at my body for flaring and hurting. Either way, I’m as good as I’m going to get.