Sometimes it’s the Small Things


When things get hard and I need a fast way to feel a little more human and a little better, a quick face wash. Once with an exfoliating facewash (I love Simple brand) and once with a gentle cleanser (again I love love love Simple brand and I also love Garnier SkinActive.)

It’s a fast easy way especially in summer heat and humidity to make me feel a little more human. It doesn’t take away pain or reduce it, but reclaiming moments of humanity and feeling comfortable in my body are just as important to me.

Anyone have their own favorite facewash products that help with the inevitable sensitive skin issues of fibromyalgia? Or some small way that lets them feel more human and better even if it doesn’t reduce pain?

Disclaimer: I am not paid in any way shape or form to mention Simple Brand or Garnier SkinActive. I buy both with my own money and use them. This is not a sponsored post or ad.


SideQuest 2: Music for the Soul


I’m trying to adjust from a second shift to an early first shift schedule at work and well…it’s going about as well as anyone would think. I’m drinking too much coffee, not enough water, and the adjustment on my sleeping schedule has me sleeping 17 hours on one off day and nothing on another. Oh and I have no desire to walk or move or do any of my exercises. So all round I really want the adjustment period over. Between then and now, and even after, music will be the thing that feeds my soul while my body tries to reject sleep as a concept.

Hamilton is a major major favorite. It has been for a while. If I need to get pumped up, or get ready mentally in any way for anything, Hamilton is a great way to do that. Guns and Ships, Yorktown, My Shot, Nonstop and The Schuyler Sisters from Act 1 are all a great way for me to sing or rap along and get ready for the day.

90s girl pop is also something that I listen to and that helps me a lot. The cheesier the better. Spice Girls, Billie Piper, Brandi, Brittany Spears, etc, it is the music of my childhood/ adolescence, and when I’m heading in to work it can help. The 90s boy bands too. I don’t choose between N’Sync and BackStreet Boys, I adore them both.

Thing is these help get me mentally ready to head into work and to deal with pain. Because let’s face it, the pain is omnipresent, it’s always around.

In a way the music gives me a little bit of power over it. A way to Bad Wolf myself over the pain, I can create myself anew when dealing with it. Music gives me that extra jolt of energy on walks to go a little further and do a little more. It gives me the jolt i need to deal with pain when I can’t manage it any other way.

Anyone have any music they love or that lets them deal with the pain better? Personally I’m always willing to find and try out new music, so share!

Episode 2: The Truth of the Smile


Even when I’m having fun and doing something I love I hurt. Even when I’m off someplace at an event for something I adore I hurt. I may be ignoring a low pain day, I may be pushing away a flare, or I may be pulling out meds and saying “I’ve got this and no matter what I’m damn well going to enjoy this,” but the pain is there always. My limited movement makes it more awkward because I haven’t yet found a way to not feel super awkward with my body and the way it moves and doesn’t move now. I’ve never liked smiling. But now, these days I feel like smiling is a mask. Something I put on for the world to tell them “oh I’m ok, I’m fine, I’m even pain free and normal” when none of those are true. Not one. Not smiling is normal. And I’m learning that I don’t need to smile and fake
it all the time. So even if I’m not smiling I’m still likely having a blast. And I’m likely internally screaming at my body for flaring and hurting. Either way, I’m as good as I’m going to get.